Thank you for sharing your experience. My situation is similar, and I've tried all the things too other than fingers up my nostrils. My situation is my right side only and no hole, yet. My bone is quite thin. Changing weather affects me, most especially wind--nausea, gut disruption, spinning sensations, can't walk a straight line, lack of focus, etc. You know.
Yesterday I spent most of the day in bed feeling miserable. Today's better, but the wind is whipping up and I can literally feel the barometric changes.
The ENT doctor here in the Midwest doesn't recommend surgery because I don't have a hole, but the hole most likely will happen as I age.
I really miss being on my bicycle and going for long walks alone.
Thank you for listening. It's a gift to talk to someone who understands.
I'm so sorry. And thank you for sharing. It is such a strange and destabilizing condition, I think hard for most people to understand. The wind! I really hate the wind. The surgery really did help me but many situations are still exhausting or rock my boat too much. So much acceptance and self care required. I'm wishing you peace and ease. 💛
Of all lines in your essay, ‘you could’ve let me know’ deeply resonates. Isn’t this what we do for each other? If the giant healer you turned to had said, “Trust. I am here to do what I can. You will do most of the work. Of which you are wondrously capable.” He could have said that but I’m guessing he was as scared as you were. If he had only known who he was dealing with. You are splendid, my darling. I thought I’d let you know. m.
That was a Wild ride. Two things I am certain about — the beauty and tenacity of your head and heart. Onwards into the great unknown!
No tenacity without my team. xo
as always I bow down to your capacity to write your way through the harrowing stuff with so much grace and wisdom
Thank you, thank you. Writing my way through... xo
Thank you for sharing your experience. My situation is similar, and I've tried all the things too other than fingers up my nostrils. My situation is my right side only and no hole, yet. My bone is quite thin. Changing weather affects me, most especially wind--nausea, gut disruption, spinning sensations, can't walk a straight line, lack of focus, etc. You know.
Yesterday I spent most of the day in bed feeling miserable. Today's better, but the wind is whipping up and I can literally feel the barometric changes.
The ENT doctor here in the Midwest doesn't recommend surgery because I don't have a hole, but the hole most likely will happen as I age.
I really miss being on my bicycle and going for long walks alone.
Thank you for listening. It's a gift to talk to someone who understands.
I'm sorry for your suffering.
I'm so sorry. And thank you for sharing. It is such a strange and destabilizing condition, I think hard for most people to understand. The wind! I really hate the wind. The surgery really did help me but many situations are still exhausting or rock my boat too much. So much acceptance and self care required. I'm wishing you peace and ease. 💛
Of all lines in your essay, ‘you could’ve let me know’ deeply resonates. Isn’t this what we do for each other? If the giant healer you turned to had said, “Trust. I am here to do what I can. You will do most of the work. Of which you are wondrously capable.” He could have said that but I’m guessing he was as scared as you were. If he had only known who he was dealing with. You are splendid, my darling. I thought I’d let you know. m.